Groups

Rare Epilepsy Network

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5 contributors discussing the topics Hypothalamic Hamartoma, KCNT1, Doose Syndrome (MAE).

Of the 65 million people living with epilepsy worldwide, a significant number have a rare form of epilepsy.

Though each syndrome is different, people living with rare epilepsies share many common seizure types, symptoms and side effects. However, because each syndrome's population is small in size, highly specialized rare epilepsy care is not readily available to every person who needs it.

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Community Action Network

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22 contributors

The goal of the Community Action Network (CAN) is to establish volunteer groups across the country in order to enable and advance the mission of the Epilepsy Foundation. Successful groups will create more epilepsy awareness and enhance and grow the support within the community the Foundation can provide. The purpose of this online group is to network with other groups from across the country, share experiences, and ask questions.

Recent contributors

Lisa Sandoval	Courtney Cordova	Dina Ambrosia	Gregg Rosenthal	Justin Leach	Meghan McCarthy	Nicole Audens
Kelsey Blum	Cristen Rigatti	Debbie Sheppe	Nancy Seme	Kathy Lyons	Brittany Foglesong	Kurt Florian

Bereavement Support

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195 contributors discussing the topic sudep.

Welcome to the Bereavement Support Group. The Epilepsy Foundation SUDEP Institute would like to express our deepest condolences to you and your family. We understand losing a loved one to epilepsy is confusing and tragic and we want to help.

Recent contributors

Dawne Hale	Soilo Arroyo	Angie Nieters	Jelissa Martinez	Sophie Rebecca	Quinn Neidig	Jerri Rush
Cheryl Marks	Gregory Helmick	Angie Nieters	Libby	Charissa Darland	Patricia Hurst	Joanna Duman