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Of the 65 million people living with epilepsy worldwide, a significant number have a rare form of epilepsy.

Though each syndrome is different, people living with rare epilepsies share many common seizure types, symptoms and side effects. However, because each syndrome's population is small in size, highly specialized rare epilepsy care is not readily available to every person who needs it.

The Epilepsy Foundation's Rare Epilepsy Network (REN) Physician Connect Group is a place where you can join conversations, share experiences and learn about guidelines and best practices in rare epilepsy syndromes.


There are 2 ways to interact in this group:

  • Joining the main REN conversation below
  • Or filtering content/posts by a specific rare epilepsy by selecting it from the TOPICS list
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