Resources

Below is a list of Resources that are available to those that are bereaved.

These specify they are for the loss of a child, at any age:

The Compassionate Friends, www.Compassionatefriends.org

The MISS Foundation,  https://missfoundation.org

The SUDC Foundation: www.sudc.org

 

For the death of a baby to miscarriage, stillbirth, or infant death, this group provides connection to a peer companion as well as funds to assist with the cost of burial or cremation services:

The Tears Foundation www.thetearsfoundation.org

 

We partner with these organizations founded by individuals who have lost a loved one to SUDEP:

www.Sudepaware.org

www.dannydid.org

www.chelseahutchisonfoundation.org

 

Also we list:

NASR, www.sudepregistry.org

 

In Canada:

Sudep Aware, www.sudepaware.org

In the UK:

Sudep Action, www.sudep.org

Specialized organization that provides SUDEP support: CSWS Epilepsy & Landau Kleffner Syndrome (ESES) Foundation Inc. www.cswsepilepsy.org

Some of the local Epilepsy Foundations offer SUDEP information and/or bereavement support

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