Lincoln was born on December 20, 2010. He was born 4 lbs, 15 oz. His glucose level was a concern and he was brought to the NICU. 5 days later, he started to have seizures. The neurologist ordered a MRI which came back abnormal. Doctors believed Lincoln had suffered a loss of oxygen to the brain at some point in my pregnancy. We spent 21 days in the NICU. Lincoln was diagnosed with Spastic Quadriplegia Cerebral Palsy, Epilepsy, Cortical Vision Impairment (CVI) and developmental delays. The first year and half of Lincoln’s life was a tough journey. He battled Infantile Spasms (a catastrophic childhood epilepsy), hypothyroidism, viral infections and countless modifications and trials of anti-seizure medications. We attended therapy sessions four times a week. Lincoln received Botox and Phenol Injections into his tight muscles. He saw his pediatrician and five specialty doctors. He was such a little warrior! Throughout Lincoln’s life, we participated in the Baby Steps 3K for Children’s NICU, The Epilepsy Stroll for the Epilepsy Foundation of MN, and the Pedal in Place Fundraiser for Cerebral Palsy and Gillette Speciality Healthcare. We come together as Team Linc to walk and raise money for these special programs. Lincoln enjoyed strolling in his wheelchair down to the nearby pond to feed the ducks. He loved swimming, reading books, listening to country music, and taking naps on the couch with mom and dad. He loved preschool and interacting with his friends and teachers. He adored his cousins and neighbors. He always worked hard in therapy. He absolutely loved his adaptive bike. Lincoln went to heaven on August 21, 2014. He died peacefully in his sleep. It was a complete shock. He died of SUDEP – Sudden Unexpected Death in Epilepsy. We did not hesitate to have Lincoln participate in a neuropathology examination through NASR. It was an important step for us to take to help those living with Epilepsy and to learn more about SUDEP. Lincoln would be proud. Lincoln was an amazing boy. Our lives have been forever changed by our best boy. He was full of love, light, energy, happiness, and joy. His contagious laugh, huge smile, and funny snort will never be forgotten. We were so blessed to have him for 3 years, 8 months, and 1 day. We know Lincoln is in heaven. Our hearts still ache to have him here with us. If you would like to follow and read about Lincoln’s journey, please visit his website at: http://www.caringbridge.org/visit/lincolnhendrickson.
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