Below is a list of Resources that are available to those that are bereaved.

These specify they are for the loss of a child, at any age:

The Compassionate Friends,

The MISS Foundation,

The SUDC Foundation:


For the death of a baby to miscarriage, stillbirth, or infant death, this group provides connection to a peer companion as well as funds to assist with the cost of burial or cremation services:

The Tears Foundation


We partner with these organizations founded by individuals who have lost a loved one to SUDEP:


Also we list:



In Canada:

Sudep Aware,

In the UK:

Sudep Action,

Specialized organization that provides SUDEP support: CSWS Epilepsy & Landau Kleffner Syndrome (ESES) Foundation Inc.

Some of the local Epilepsy Foundations offer SUDEP information and/or bereavement support