My 20 year old son, Brian, died from SUDEP on 2/27/21, peacefully in his sleep. He was a beautiful boy, so full of love and curiosity. He fought hard against epilepsy, even having brain surgery (temporal lobectomy) in 2013. His battle was long and hard, and he so wanted to be free of seizures/vomiting, and all of his physical problems. But his spirit always shined, he had a great sense of humor and was so creative. Finding him, giving him CPR, trying to save him and not being able to...and just this empty hole in my heart and our home, it's the worse pain I could imagine. Looking forward to discovering how others navigate this horrible journey....
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