My name is Mylissa and we lost our 5 yr old son Dallas on 1/12/11 to SUDEP. Its been 5 years and I still struggle with the loss. Grief has affected our family and my health. We want to make a difference in changing the way society perceives seizures and to educate others/professionals on SUDEP. We never knew of the word SUDEP until after our son passed and learned through The Danny Did Foundation. We joined in their mission to help others dealing with seizures and ones that have lost a loved one due to SUDEP. I joined this group to find a safe place to talk about grief because the loss itself is still very devastating to us. We move forward but because we have no choice and it feels that some moments time has stood still. Sigh
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